I just wanted to share a personal celebration for myself. One year ago today, I had a successful MVD brain surgery for my Trigeminal Neuralgia (TN). TN is a rare, horrifically painful disorder that is nicknamed "The Suicide Disease". It feels like you are being electrocuted, jolted, and stabbed in your face time after time, day after day. Anti-seizure meds are used at very high doses to help control the pain but don't do a great job and turn you basically into a zombie. I battled with this disorder for almost a year before I went under the knife and remain both pain and med free to this day. I wanted to ask all of you that pray, to say a prayer for those who still suffer from this horrible disease. I will be publishing my story on here soon.
Happy for you. Continue to give praise. Glory be. Peace.
I am so glad you are OK and I will pray you remain in good health and can share your experience to help others. It sounds like what I have in my hands, arms and feet but I believe that is from Myelopathy. It does get quite unbearable at times so have an idea of what you have been going through and of course know anything to do with the head and brain are so serious.
God bless you and will be looking for your article!
I have had a temporary case of it associated with my MS and certainly empathize with you, as the numbness, tingling, buzzing, and electrical shocks on one side of my face and scalp were unbelievably intense and painfully sharp, like ice picks or 1000 razor blazes and rubbing alcohol. I am so happy for you that you have found relief and will keep you in my deepest thoughts and well wishes for continued success.
As I hear these symptoms I am really wondering if what I am experiencing is what I thought it was. I have had the electrical shock and buzzing and drawing nerve like labor pains and doctors just passed me off like I was a nut! (like zapping in the brain?) Now I hear others having the same thing makes me think I got swept under the rug for many years by no account doctors! Years of pain with not one helping me. Now they say I do have Myelopathy but these symptoms sound like maybe more than one thing going on.
My husband has TN. He was diagnosed at the start of 2013. It went away for a while. The Gaba was controlling it. Then out of no where it came back full force about 2 months ago. His dosage of the Gabapentin was up to 1800 mg a day. He hasn't slept through the night in a month. It seems to always kick in when he lays down. I usually end up finding him sound asleep, sitting straight up on the couch. It is awful and I hate there is nothing I can do to help him. He refuses to even consider the surgery.
I am so glad you are better. NO ONE deserves that kind of pain. My husband's doctor said it is like having your leg cut off with no pain meds. I can't even imagine. Amazing for you! I'm sure life feels so much better!!!
So sorry to hear about your husband, Peeples. It is an awful disease to have and the pain is truly indescribable. It trumps childbirth tenfold. Please have him look into surgical options. I was terrified to have the brain surgery at first but after the extensive research I did and many visits to neurologists, pain doctors, neurosurgeons, etc. and after almost a year on those awful meds, I knew that was my best option. It was certainly a leap of faith and took a ton of courage on my part but I would have done pretty much anything to get out of the pain and meds. Dr. Ken Casey, who is a true expert with TN, did my surgery and I thank God that I found him. He wrote the book "Striking Back" that I'm sure your husband is familiar with. If he is not, have him read it. It is the best "layman's" book on everything TN and really helped me to decide what to do. My leap of faith definitely paid off and now I'm doing all that I can to pay it forward to others with TN. Thanks for your post. I'll pray for your husband.
by Peeples 3 years ago
Anyone ever have Trigeminal Neuralgia?My husband has been going through this for a couple of weeks now and none of the medications are helping. If you have had it was there a certain medication that was helpful for you?
by Michele Travis 6 years ago
What is the best way to keep your hair healthy?I have had brain surgery, and my hair is growing back. I have changed color a few times. How can I keep it healthy so it can grow longer?
by Georgiakevin 8 years ago
I am so angry I could spit! I am seeing waffling on both side of the political spectrum on health care reform.Some people are saying our health care is the best in the world and doesn't need to be changed,others are wanting to add unreasonable and unworkable proposals to health care reform....
by stephdking 6 years ago
My daughter is 18, son is 7. My daughter accuses me of being overprotective. I try to ease up, but the thought of them drinking out of a water fountain or touching an unsanitized shopping cart drives me crazy. My son was born 7 weeks premature, which is when my germ phobia began. ...
Copyright © 2018 HubPages Inc. and respective owners. Other product and company names shown may be trademarks of their respective owners. HubPages® is a registered Service Mark of HubPages, Inc. HubPages and Hubbers (authors) may earn revenue on this page based on affiliate relationships and advertisements with partners including Amazon, Google, and others.
|HubPages Device ID||This is used to identify particular browsers or devices when the access the service, and is used for security reasons.|
|Login||This is necessary to sign in to the HubPages Service.|
|HubPages Traffic Pixel||This is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.|
|Remarketing Pixels||We may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.|
|Conversion Tracking Pixels||We may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisement has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.|