Why has Asperger's Syndrome often been misdiagnosed or found later in life?
I cannot be sure, but I am guessing that maybe some people have milder cases than others, or possibly just because education on Asperger's is really more of a relatively new thing. The schools are supposed to be the first to begin the diagnosis, but, our school system didn't even know what it was.
Asperger's Syndrome has been - and continues to be - poorly understood by those who would typically refer a child for diagnosis and by those who can make a diagnosis.
Diagnosis is often precipitated by the concerns of a child's caretakers. Many parents, teachers, pediatricians, childcare professionals, friends, and family that children come into contact with have only a rudimentary understanding of Asperger's Syndrome, if they're familiar with it at all. People often rely on stereotypes in the media for their information. So, unless a child is a dead ringer for Rain Man or Sheldon Cooper, diagnosis is less likely.
Psychological professionals qualified to diagnose are, sadly, largely unaware of the range of variability within Asperger's Syndrome. While it has gotten better over the years, the problem persists today.
I recently met a psychologist who found it fascinating that I had an Asperger's Diagnosis because it is so rare in women. Considering that it is not an X-linked genetic trait, I am puzzled as to how he came to this conclusion. The rate of diagnosis might be as much as seven times higher in men than in women, but identification of some does not mean that you've found them all.
The reality is that, just as typical women are different from typical men, women with Asperger's Syndrome are - surprise! - different from men with Asperger's Syndrome. Shocking, I know.
Another barrier to diagnosis is the ability to appear to be functioning normally. Many of us can fake it very well. That doesn't mean we're not crippled by social anxiety from an inability to navigate social situations, among other problems. In fact, in some ways the undiagnosed who can remain "under the radar" are not able to thrive the way that a diagnosed Aspie can.
It is getting better, particularly for young boys and for adults who can advocate for themselves. Our young girls experience the most neglect when it comes to diagnosis. We will still see women being diagnosed as adults twenty and thirty years from now.
by Jaggedfrost 5 years ago
Does the removing of Asperger's Syndrome from the DSM series... make you feel like less of a person if you were previously diagnosed as such, Why or why not?
by yankeeintexas 6 years ago
How do you handle a child that has asperger's syndrome?
by backporchstories 5 years ago
What do you know about Asperger Syndrome?Asperger syndrome is a new diagnosis of a form of autism and very hard to diagnose. A friend of mine has spent the last 10 years putting her son in all kinds of state facility to get help for his odd and unusual violent behavior. All the places...
by Stephanie Hicks 10 years ago
Hi Hubbers,Last week, my youngest son (one of twins) was diagnosed with mild Asperger's Syndrome. To be honest, we suspected for a while - he is nearly 5 - but didn't really want to face it, I guess. He appears to be very, very mild. Looks people in the eye, and shows...
by LPogue 8 years ago
Is there a simple way to determine if someone has Asperger's Syndrome without medical testing?Recently, I have become concerned that my husband may have Asperger's. He has all the classic symptoms. Are there other diagnoses that might fit the same symptooms? Is there a way to determine...
by Annette Thomas 6 years ago
I know this is not a death sentence. But I hurt for him. I know he's different from the other kids....he just can't help it! Bless his little heart, he's the most joyous child you'll ever meet. Funny, outgoing with a big vocabulary. But just pushy enough to get in other...
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