Breast Cancer Info - My Favorite Online Resources and Products

After my breast cancer diagnosis on June 25, 2008, I immediately took to the internet to research. It was overwhelming, but I learned a lot in those first few hours. It's been over a year now and in wanting to continue to help others, this is a compilation of my favorite websites related to breast cancer.  You can read my story here, and through the links at the bottom. 

General Sites

www.cancer.org This is the link for the American Cancer Society. It contains a plethora of information on cancers of all kinds, as well as resources and links.

www.plasticsurgery.org This is the link for the Society of Plastic and Reconstructive Surgeons. Here you can find informational brochures and public education about plastic surgery. This site includes news on the latest advances of specific surgical procedures, including how to prepare for surgery, the types of anesthesia used and how long recovery takes. You can also look for answers to the most frequently asked questions about plastic surgery.

www.gildasclub.org  Gilda's Club mission is to create welcoming communities of free support for everyone living with cancer - men, women, teens and children - along with their families and friends. Their program is an essential complement to medical care, providing networking and support groups, workshops, education and social activities.  When I first started my treatment I was not happy with my doctor, the treatment, the commute, my whole situation - my local Gilda's Club helped me find my current oncologist and treatment center and it changed my life - this part of my life, anyway.  They even made the calls for me to the doctor's office to get the ball rolling and get me in right away - and this was all over the phone with Gilda's Club!

Breast Cancer Websites

www.pink-link.org Pink Link is an online breast cancer support network. When you join you can be linked to a network of fellow survivors, family members, medical pros and others who are there for each other. You can share experiences, get information, ask questions and help each other. It's free to join, by the way. I have gotten a lot of support on this site and its member forum.

www.komen.org This is a wonderful site for those afflicted with breast cancer and those who want to be involved in finding the cure. You can learn everything from early detection to treatment options and what questions to ask your doctors. You can even purchase products that help support the cause. You can also engage in therapeutic social networking.

http://www.breastcancer.org/ Here you can educate your self even more, with guides to understanding your pathology reports to treatment and side effects and help dealing with day-to-day matters.

www.networkofstrength.org was formally known as Y-ME National Breast Cancer Organization. Network of Strength keeps you informed. They don’t give medical advice - they explain in plain language the information you’re likely to encounter. No matter what the breast cancer topic is, Network of Strength provides information you can trust with a survivor’s touch. They also offer 24/7 support with YourShoes Peer Counselors.

Hair Loss Solutions

www.4women.com BeauBeau™ head scarves are designed specifically for hair loss due to chemotherapy, alopecia or other medical conditions. They're unique, fashionable and versatile! These ended up being my favorite as the fit is great and they are very comfortable and can be worn in a few different ways - check out the Styling Options page on their website for great how-to instructions and photos.

Click thumbnail to view full-size
Pony Mode - just one of the many optionsbangs come extra long so they can be cut as desiredbangs are hidden from inside the lining
Pony Mode - just one of the many options
Pony Mode - just one of the many options
bangs come extra long so they can be cut as desired
bangs come extra long so they can be cut as desired
bangs are hidden from inside the lining
bangs are hidden from inside the lining

www.hatswithhair.com Hip Hats With Hair were invented by a fashion designer.  They are made to be more comfortable than a full wig and to look natural and feel good. As we all know, feeling good about your appearance is proven to boost self-esteem. You can also cut and save your own hair before chemo and they will use your hair to make a Hip Hat With Hair - cool idea!

www.headcovers.com carries hats, turbans, wigs, and scarves as well as breast cancer awareness gifts.  They also have a good selection of helpful cosmetics. 

Brows & Lashes

Losing my hair was tough, but for some strange reason losing my eyebrows and lashes was worse. I've never been much of a makeup wearer, but what I always did wear was mascara - I felt I looked so much better even if that's all I had on. After losing the hair on my head, I still had my eyelashes and brows all through chemo, and I recall saying on more than one occasion "at least I still have my eyelashes and eyebrows". I started losing them a few weeks after chemo ended (strange?) and i was distraught - as soon as I lost a few hairs I was searching for prosthetics! I did not lose every last strand, but I may as well have, because it looked even more weird with just a few stray lashes and brow hairs there! Ultimately, here's what I found:

Brow Products I Like

Anastasia Brow Pen is like a fine felt tip marker. It looks natural and allows you to create fine individual lines. Now that my brows have grown back, I still use this because I like it so much! I purchased mine at Sephora.

Revitalash - apply a small amount once a day to achieve your very own long, beautiful, healthy looking lashes - no matter how brittle, short, fragile, thin or sparse your eyelashes are. Lots of people told me first-hand that this product really works!


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Comments 17 comments

rmcrayne profile image

rmcrayne 7 years ago from San Antonio Texas

This is a great compilation and a great idea. I should do the same with all my thyroid research! You appear on my Breast Cancer hub on the side bar. As I assume these update continuously, and I am not sure what the criteria is, would it be okay if I link to this hub in my links capsule in my hub?

Thanks for a great resource hub, Rose Mary


Lily Rose profile image

Lily Rose 7 years ago from East Coast Author

Thanks for the great comment! My hubs aren't continually updated as a blog is. I have a few individual hubs regarding my cancer journey, such as my "Breast Cancer Treatment: What the Doctors Don't Tell You" hub and more (see my profile to view all my hubs). You absolutely can link this hub and any of my other cancer hubs to yours. I will be heading over to read your brest cancer hub now...


KellyEngaldo 7 years ago

Wonderful references. I just finished reading Deanna Favre's book Don't Bet Against Me. I thought it would be just a personal journey but it is more than that. Her book provides a tremendous amount of reference material. The material you provided about brows and lashes I have never seen before. Excellent.

Thank you very much for your research and guidance.


Lily Rose profile image

Lily Rose 7 years ago from East Coast Author

Thank you for visiting, Kelly. Unfortunately all the research I put into this stuff was out of necessity for me; I wish I has come across this information before having to find it myself, but it all worked out in the end. That Sephora Brow Pen is awesome - I still use it even though my brows have grown back!


Neil Ashworth profile image

Neil Ashworth 6 years ago from United Kingdom

Very good piece of writing.


Lily Rose profile image

Lily Rose 6 years ago from East Coast Author

Thank you, Neil!


Pinkchic18 profile image

Pinkchic18 6 years ago from Minnesota

Such awesome resources you've built here. Thank you so much for sharing them! I featured your hub in my hub about the origin of the pink ribbon. Thank you again, keep posting!


Lily Rose profile image

Lily Rose 6 years ago from East Coast Author

Thanks for the kind words and the link, it's well appreciated!


tylercoop profile image

tylercoop 6 years ago

This is a really good hub. I also had breast cancer, it has been 7 years and I am cancer free. Thanks for this hub.


Lily Rose profile image

Lily Rose 6 years ago from East Coast Author

Thanks for your comment, tylercoop, and high-five to you for being a survivor, too!


amin19692 6 years ago from Karachi

It is really nice hub and informative article


rwelton profile image

rwelton 6 years ago from Sacramento CA

Lily Rose- thanks for the article. Both my Mom and Mother in law had Breast Cancer and I am recovering well from Tonsil Cancer. Good links. Good informative resources are extremely important when you get that "talk" from your doctor.

rw


Lily Rose profile image

Lily Rose 6 years ago from East Coast Author

Wow, that's actually the first time I've heard of tonsil cancer! I'm glad to hear you're recovering well from it. Thanks for visiting and commenting; best wishes to you and your family.


Michael Park 5 years ago

Webmaster,

Please consider adding a link to http://www.parkmastectomy.com to your webpage under resources for post mastectomy products. We have the largest selection of post mastectomy products and excellent customer service.

Thank You,

Michael Park


Lily Rose profile image

Lily Rose 5 years ago from East Coast Author

Thank you for your comment, Michael. Since I don't have any first-hand experience with you or your website, I don't feel it would be right to say you are one of my favorite resources ....however, I will let your comment remain where it is and your link will be there. Best wishes and thank you for providing much-needed products. I just wish more companies would carry/manufacture some items for the "younger" crowd - mastectomy/breast cancer patients are no longer 50+ (I was diagnosed at 37!).


GmaGoldie profile image

GmaGoldie 5 years ago from Madison, Wisconsin

I just started a blog on cancer and the research. This is very valuable information that all of us need. Excellent job on the research. Thank you very much! Voted up and awesome - superb job on the research and writing.


Lily Rose profile image

Lily Rose 5 years ago from East Coast Author

GmaGoldie,

The research was purely out of necessity; when I was diagnosed and then lost my hair from chemo I was desperate for a resource such as this and couldn't find it anywhere. I hope that it continues to help others. Thanks for stopping by and commenting! Best of luck with your new blog, too!

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