I left the name out of my original question in order to boost participation. As I said, I have suffered with this since I was a child. Until 2003 it was more or less an annoyance. In 03 I had shoulder surgery and took narcotic pain meds. My RLS became a major problem and has only gotten worse since. I recently spoke with a neurologist who confirmed that the narcotics I took made my condition worse and was not relieved with time.
I now take mirapex 0.75mg ER daily. I have to supplement that with 0.25 mg as needed.
Here are some bits of info you may find helpful:
RLS is a serious medical condition with a ridiculous and misleading name (my
RLS Foundation-next to Mayo clinic in Rochester, Minnesota. Chief neurologist
from Mayo's Sleep Medicine is chairman of the board for RLS Foundation.
RLS Foundation can be found at www.RLS.org
Name change in progress- to become Willis-Ekbom Disease
According to the RLS foundation, up to10% of the US population has this
Help is available, but quite often, RLS sufferers must be their own advocates. Read, learn and insist on good, medical treatment.
I was to go to Mayo Clinic for an evaluation a couple of weeks ago, but my insurance refused to pay because Mayo is not in the insurance company's network. I am filing a grievance and resubmitting the request.
I would be interested in hearing more about how RLS has impacted your life. I will share more of my story as we go along.
Let's keep this question going for a while and try to get some folks some help.