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Breast Cancer Info - My Favorite Online Resources and Products

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By Lily Rose


After my breast cancer diagnosis on June 25, 2008, I immediately took to the internet to research. It was overwhelming, but I learned a lot in those first few hours. It's been over a year now and in wanting to continue to help others, this is a compilation of my favorite websites related to breast cancer.  You can read my story here, and through the links at the bottom. 


General Sites

www.cancer.org This is the link for the American Cancer Society. It contains a plethora of information on cancers of all kinds, as well as resources and links.

www.plasticsurgery.org This is the link for the Society of Plastic and Reconstructive Surgeons. Here you can find informational brochures and public education about plastic surgery. This site includes news on the latest advances of specific surgical procedures, including how to prepare for surgery, the types of anesthesia used and how long recovery takes. You can also look for answers to the most frequently asked questions about plastic surgery.



www.gildasclub.org  Gilda's Club mission is to create welcoming communities of free support for everyone living with cancer - men, women, teens and children - along with their families and friends. Their program is an essential complement to medical care, providing networking and support groups, workshops, education and social activities.  When I first started my treatment I was not happy with my doctor, the treatment, the commute, my whole situation - my local Gilda's Club helped me find my current oncologist and treatment center and it changed my life - this part of my life, anyway.  They even made the calls for me to the doctor's office to get the ball rolling and get me in right away - and this was all over the phone with Gilda's Club!


Breast Cancer Websites

www.pink-link.org Pink Link is an online breast cancer support network. When you join you can be linked to a network of fellow survivors, family members, medical pros and others who are there for each other. You can share experiences, get information, ask questions and help each other. It's free to join, by the way. I have gotten a lot of support on this site and it's member forum.

www.komen.org This is a wonderful site for those afflicted with breast cancer and those who want to be involved in finding the cure. You can learn everything from early detection to treatment options and what questions to ask your doctors. You can even purchase products that help support the cause. You can also engage in therapeutic social networking.

http://www.breastcancer.org/ Here you can educate your self even more, with guides to understanding your pathology reports to treatment and side effects and help dealing with day-to-day matters.

www.networkofstrength.org  was formally known as Y-ME National Breast Cancer Organization.  Network of Strength keeps you informed.  They don’t give medical advice -  they explain in plain language the information you’re likely to encounter.  No matter what the breast cancer topic is, Network of Strength provides information you can trust with a survivor’s touch.  They also offer 24/7 support with YourShoes Peer Counselors.



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Hair Loss Solutions

www.4women.com BeauBeau™ head scarves are designed specifically for hair loss due to chemotherapy, alopecia or other medical conditions. They're unique, fashionable and versatile! These ended up being my favorite as the fit is great and they are very comfortable and can be worn in a few different ways - check out the Styling Options page on their website for great how-to instructions and photos.


Pony Mode - just one of the many options
Pony Mode - just one of the many options

www.hatswithhair.com Hip Hats With Hair were invented by a fashion designer.  They are made to be more comfortable than a full wig and to look natural and feel good. As we all know, feeling good about your appearance is proven to boost self-esteem. You can also cut and save your own hair before chemo and they will use your hair to make a Hip Hat With Hair - cool idea!

www.headcovers.com carries hats, turbans, wigs, and scarves as well as breast cancer awareness gifts.  They also have a good selection of helpful cosmetics. 

Brows & Lashes

Losing my hair was tough, but for some strange reason losing my eyebrows and lashes was worse. I've never been much of a makeup wearer, but what I always did wear was mascara - I felt I looked so much better even if that's all I had on. After losing the hair on my head, I still had my eyelashes and brows all through chemo, and I recall saying on more than one occasion "at least I still have my eyelashes and eyebrows". I started losing them a few weeks after chemo ended (strange?) and i was distraught - as soon as I lost a few hairs I was searching for prosthetics! I did not lose every last strand, but I may as well have, because it looked even more weird with just a few stray lashes and brow hairs there! Ultimately, here's what I found:



Comments

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rmcrayne profile image

rmcrayne  says:
3 months ago

This is a great compilation and a great idea. I should do the same with all my thyroid research! You appear on my Breast Cancer hub on the side bar. As I assume these update continuously, and I am not sure what the criteria is, would it be okay if I link to this hub in my links capsule in my hub?

Thanks for a great resource hub, Rose Mary

Lily Rose profile image

Lily Rose  says:
3 months ago

Thanks for the great comment! My hubs aren't continually updated as a blog is. I have a few individual hubs regarding my cancer journey, such as my "Breast Cancer Treatment: What the Doctors Don't Tell You" hub and more (see my profile to view all my hubs). You absolutely can link this hub and any of my other cancer hubs to yours. I will be heading over to read your brest cancer hub now...

KellyEngaldo profile image

KellyEngaldo  says:
5 weeks ago

Wonderful references. I just finished reading Deanna Favre's book Don't Bet Against Me. I thought it would be just a personal journey but it is more than that. Her book provides a tremendous amount of reference material. The material you provided about brows and lashes I have never seen before. Excellent.

Thank you very much for your research and guidance.

Lily Rose profile image

Lily Rose  says:
5 weeks ago

Thank you for visiting, Kelly. Unfortunately all the research I put into this stuff was out of necessity for me; I wish I has come across this information before having to find it myself, but it all worked out in the end. That Sephora Brow Pen is awesome - I still use it even though my brows have grown back!

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