Rare unexplained illnesses on the increase.

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   kiera305posted 12 years ago

   After another insulting incident with the ambulance service yesterday telling me why they shouldn't be taking me to hospital, what is the emergency service for?
   
   I believe, with evidence, that my children and I have a good chance of having Spinabifida palpable mass, undetected. I'm over being told impossible, especially considering my dad was in the navy during Vietnam.
   
   My son was assaulted, body slammed onto the ground. In January something popped on my back made me leg less for 5 mins. It felt like a champagne cork only as big as a cereal bowl. Both sustained trauma to our spines.
   
   My son acquired a neck jerking motion in January. I've done nothing but dispute diagnosis since due to different symptoms appearing at different times. I too have started to show the same symptoms just at different times except the neck jerking.
   
   My hands and feet are tingling off tap. My stomach moves like babies are in there and it feels like its on fire. My feet even look like they're turning black. When I googled pictures of Spina bifida undetected palpable mass there was 2 pictures. I nearly died when I saw a sore at the base of a spine. I get that 2 or 3 times a year. Then when I saw a picture of someone's black feet. I nearly threw up. That's what mine feel like they're turning into as well as my hands.
   
   I'm too sick to do anything and I've lost faith in anyone and everyone due to being told impossible and treated as delusional.
   
   The ambulance driver explained to me they would just be taking me there, I should just go to my GP, the emergency ward is no different.
   
   My skin looks like its turning orange. Why is my stomach burning off tap?
   
   I don't understand our symptoms, they are real, they're not in my head. If they're in my head they're in my 3 children's heads too, my other 2 are showing symptoms too.
   
   With rare unexplained illnesses on the increase, it's about time the medical profession started to do Maths with symptoms instead of just looking at today and not worrying about tomorrow and forgetting about yesterday.
   
   My equation can be backed with evidence, they won't prove I'm wrong. I don't get it!
   
   Has anyone else been treated like this then proven right?

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      tammybarnetteposted 12 years agoin reply to this

      Keep swithing doctors until you find somebody who listens. I have an amazing doc! She listens to my concerns and orders all appropropiate tests. I had some issues with fibroid tumors in my uterus, my OB/GYN assured me of this being normal for my age and number of children. This was not good enough for me, my regular doc, Mrs. Sheryl Pack, who I adore, got me into a wonderful specialists. Always trust yourself, you know your body than any doc!

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         kiera305posted 12 years agoin reply to this

         Thank you. I've tried doctor shopping. I can't keep repeating myself. I know I have to try.
         I can't keep doing that. I'm exhausted and scared. More scared for my children. Reading something last night I found Lipoma. I have angiomylypoma apparently on my kidneys when I had my twins. When I had h pylori breathe test 18 hours later I felt something move in my stomach like a huge worm. My son came out at the same time, another ambulance that wouldn't come, knowing I had rumors pregnant, research makes me believe it's possible my daughter has mirror mutation. Meaning exact but more virulent. Yes I know what I feel, I know what I see. I'm more concerned because of people's delusional judgements of me my kids are going to suffer. My kids break bones, splits in their ones, whenever they hurt themselves. If I'm right I'm scared, due to also believing my parents both have symptoms of the same thing. 3rd generation mutation equals bone marrow disease. Is your doctor in Melbourne.

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            tammybarnetteposted 12 years agoin reply to this

            I live in the US, I am so sorry to hear about all you and your family are being forced to endure while being ignored by your physicians. Maybe you should speak to a lawyer. My prayers are with you.

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   knolyourselfposted 12 years ago

   You mean like this?
   
   http://www.medscape.com/viewarticle/405673_4

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   psycheskinnerposted 12 years ago

   I would suggest starting with a new GP and having them coordinate specialist services.  Specialist diagnoses are easiest to arrive at with a GP who will stick at it keeping track of everything. Keep changing doctors til you find the right one.

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   ftclickposted 12 years ago

   careful with taking antibiotics or painkillers as they can bring on another problem

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