Calling in any chips I have...

1. 68

   lrohnerposted 15 years ago

   Look guys, I don't know how many chips I have available here, but I'm calling them in. I don't care what god you pray to or what religion you are or aren't. Just please, please, pray for my new grandbaby. I honestly don't care if you pray to the trees in your backyard.
   
   My daughter had fraternal twins on Tuesday, and one of them has been diagnosed with an extremely rare genetic disease that is life threatening -- KATP type congenital hyperinsulinism. They are waiting for her to stabilize before they airlift her to Philadelphia, one of only 4 hospitals in the country that are considered experts in this particular disease.
   
   Again, I don't care who you pray to. I just need all of your prayers. Big, big, big-time. I'm not looking for your sympathy, although much appreciated. I just want your prayers.

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      ledefensetechposted 15 years agoin reply to this

      Oh my Lord, I am so sorry.  You and yours are of course in the prayers of me and mine.  The good news, if you can call it that, is that they have to keep the baby's blood sugar from bottoming out.  That's a bit easier than, say, bringing it down.  Surgery is apparently one way to treat it, do you know if that option is on the table?  Please keep us informed.
      
      Just so you know I'm a type II diabetic and my fiance has double diabetes, if you need any advice or need to know anything about controlling blood sugar feel free to ask.

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         lrohnerposted 15 years agoin reply to this

         Thanks for your thoughts, Ledefensetch, but I know all too well. My other daughter is a Type I diabetic. So I have a grandbaby producing too much insulin, and a daughter that can't produce any. Go figure.

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            ledefensetechposted 15 years agoin reply to this

            You're most welcome, it can be pure hell dealing with blood sugar problems, especially if you have to learn from scratch.  The condition doesn't seem to be as serious as someone with type I diabetes so there is hope that some drug therapy or surgery can correct the problem.  We can be thankful they caught it and know what the problem is.  That's half the battle right there.  I'm sure I speak for everyone when I say we will keep you in our prayers.

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               lrohnerposted 15 years agoin reply to this

               Thanks, ledefensetech. I wish that were the case. Unfortunately, this is way more serious than someone with Type I diabetes, which my other daughter has and I have been dealing with for over 10 years. This is like god's bad joke.
               
               In this case. both parents happened to have the same gene that mutated, causing a genetically mutated pancreas in my grandbaby that produces waaaaay more insulin than her body needs. There is no cure. The only therapy is surgery and lifelong problems. And did I mention that I'm a mess.

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      AEvansposted 15 years agoin reply to this

      I am praying right now and will continue to pray not a problem at all.

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      wordscribe41posted 15 years agoin reply to this

      I will, Irohner, of course.  And I'm so sorry to hear about your granddaughter.  I'm on it NOW.

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2. 68

   Beth100posted 15 years ago

   Irohner, you have my prayers.

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3. 61

   Jane@CMposted 15 years ago

   Praying hard for Cara, her parents, her sister & of course you Granny.

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4. 68

   lrohnerposted 15 years ago

   Thank you, Beth.

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   TamCorposted 15 years ago

   Sending prayers for your little grand-daughter, and for you and your whole family...

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   Eric Graudinsposted 15 years ago

   I'm sending my best thoughts to you and your family.

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7. 68

   lrohnerposted 15 years ago

   Thank you Jane, Tam and Eric. Just please, please pray for her.

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   Nelle Hoxieposted 15 years ago

   Prayers all around you and your family - and her doctors and nurses and the pilots who will take her to the hospital.

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9. 64

   fayansposted 15 years ago

   May God hear everyone's prayers and thoughts here.
   
   Thing - whatever it may be - happens for a reason. May you be strong, Irohner!

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    Shadesbreathposted 15 years ago

    I will.

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11. 61

    BrianFanslauposted 15 years ago

    You have my prayers I wish your family the best and congratulation on becoming a grandfather.

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    Insurance Guyposted 15 years ago

    Don't be worried Irohner as long as all these people in here prays for her and as long as God is hearing this, everything is going to be just fine

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    mommyfreelancerposted 15 years ago

    We'll include you and your family in our prayers tonight. My son 4yo son always make a wish, tonight will be for you. God bless!

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    Uninvited Writerposted 15 years ago

    I'm definitely sending out good thoughts to you and you family. Please keep us posted.

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15. 64

    Dale Mazurekposted 15 years ago

    Everyone here prayed for my father when he had his heart attack.  I truly believed it helped because when I showed him the wishes from Hubbers he smiled so there is power here at HubPages.
    
    I will definatly pray for everyone involved.  Of course please keep us informed.

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    goodfriendiamposted 15 years ago

    Sending out good thoughts, to you all.

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    Cam Anjuposted 15 years ago

    Dear you don't need any chips to get my prayers... just ask, of course I will pray for them.
    
    ¸.•*¨`*¸.¸.•*¨`*Lots of love & good energy coming to them.¸.•*¨`*¸.•*¨`*¸

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    lrohnerposted 15 years ago

    Honestly, you've all got me in tears right now. Thank you so, so much. It's one thing for a baby to have a disease. It's another for them to have a rare disase. It's another for them to have an extremely  rare disase with few experts to treat it. I'm so crying right now it's pathetic. Thank you again.

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       Cam Anjuposted 15 years agoin reply to this

       ((hugs)) To you dear.

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       ledefensetechposted 15 years agoin reply to this

       You wouldn't be human if you didn't tear up now and we wouldn't be human if we didn't give you our best wishes and prayers.  That, in the end, is what it means to be human.

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19. 68

    lrohnerposted 15 years ago

    Everyone thank you for your support in what I am sure is my darkest hour. Really, thank you and keep praying.

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    yoshi97posted 15 years ago

    I hope for the best as I have been exhausted of prayers for years. What will be will be, but I sincerely hope - in this one case - that in the end it will all be good.
    
    In some rare cases, hope is as good as prayer, so it is my wish that the hope that I have for you equates out to the extra prayer needed for all to be well ...

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    AsherKadeposted 15 years ago

    WERE THESE THOSE CUTE BABY TWINS WESAW IN THE FORUMS? OMG!THEY LOOKED SO HEALTHY AND BIG!

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       lrohnerposted 15 years agoin reply to this

       Yes Asher. Same babies. They were fraternal twins, though, and only one baby wound up with the disease. And ironically, it's the disease that somehow caused her to be so large at birth. Go figure.

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    Susana Sposted 15 years ago

    Oh my! I'm really sad to hear this. Praying hard and thinking of you all

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    Lisa HWposted 15 years ago

    Irohner, may all the prayers that are being said for your little granddaughter be answered.  Maybe some prayers for strength for her parents and you, and prayers that some new treatment become available, wouldn't hurt either.

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    Eaglekiwiposted 15 years ago

    May Gods mercy intervene and provide the necessary stabilty my dear friend!!
    ( and you know Pa has the very best in specialised health)
    
    I will hold those precious babies up in prayer too !! calling all angels.

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    Zsuzsy Beeposted 15 years ago

    Irohner, my prayers are yours...strength to you and your family

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    Lady_Eposted 15 years ago

    I pray for God's healing upon your Grandchild. I pray she pull's through okay and enjoys good health with her Twin.
    
    Take Care. xx

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27. 68

    lrohnerposted 15 years ago

    Thank you all for your prayers and your support. By the end of this week, Cara will be in Philly with the top medical specialists in this disease, and surgery will follow shortly. Keep praying.

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