Wish me luck...

Jump to Last Post 1-19 of 19 discussions (26 posts)
  1. lrohner profile image69
    lrohnerposted 12 years ago

    My presence on the boards may be spotty for the next month starting sometime tomorrow or Sunday. (Not sure because my daughter is pretty sick right now from an infection from the C-section, so our departure may be delayed...)

    They airlifted my 11 day old grandbaby to Philly today to the only center in the US that specializes in this disease. My daughter, myself and Cara's twin sister, Chloe, are headed down there tomorrow (hopefully). We expect a stay of a minimum of 30 days and possibly up to a few months.

    I am told there is wireless access throughout the Ronald MacDonald house where we will be staying and also at the hospital, but really won't know until we get there.

    I expect to still be here and will give anyone who is interested updates via hubs, but really not sure. So wish me luck, and keep Cara in your prayers. Seriously, keep her in your prayers. I'm counting on all of you.

    FYI...this disease, Congenital Hyperinsulinism, is so rare that there are fewer than 80 babies born each year with it in the United States.

    If you want to learn more, please visit http://helpcara.com.

    1. beautyrose profile image59
      beautyroseposted 12 years agoin reply to this

      I pray for there fast recovery.

  2. profile image0
    wordscribe41posted 12 years ago

    Thanks for the update.  I just posted a comment on the website.  I have been and will continue to think of you all during this difficult time.  When you can, leave us updates.  Hang in there, sweetie!

  3. Misha profile image63
    Mishaposted 12 years ago

    Good luck to you and yours, and i will be thinking of them smile

  4. Cls1321 profile image59
    Cls1321posted 12 years ago

    best of luck.

  5. Lisa HW profile image62
    Lisa HWposted 12 years ago

    Irohner, I'm sure you, your daughter, your little granddaughter, and the rest of your family will be thought of by a lot of people here on HubPages.  Best, best, of luck to you, the baby, and her parents.  How fortunate little Cara is to be able to be treated where they best understand her condition.   


  6. lrohner profile image69
    lrohnerposted 12 years ago

    Thanks, Wordscribe and Misha. I'm hanging by a thread right now, so your support really, really counts.

    The only good news out of all of this is that if they have to do a pancreatectomy (sp?) on Cara, my grandbaby, it might help my 21 year old diabetic daughter. It would be the first of its kind surgery.

    FYI...I think I hit bottom today when they baptized Cara before they started transport. Pretty much everything hit home then.

  7. lrohner profile image69
    lrohnerposted 12 years ago

    CLS and Lisa, thank you for your thoughts and your support. I'm not overly religious, but please keep up the prayers.

  8. profile image0
    wordscribe41posted 12 years ago

    I can imagine the baptism was incredibly emotional.  Honestly, anyone would be hanging on by a thread right now.  The website is a wonderful tribute, Irohner.  Sometimes these can be very positive outlets.  My sisters twins had a very rare in utero condition called Twin to Twin Transfusion Syndrome.  The website they set up was a very helpful place to vent and journal.  I will visit it for updates.  Take care of yourself.

    1. lrohner profile image69
      lrohnerposted 12 years agoin reply to this

      I broke down over the Baptism. But then I'm breaking down quite a bit these days. The dad can't be there because of his job, so I'm going to have to be the lead with the docs, take care of my daughter and my other grandbaby AND work full time. I'm pretty damn scared. I haven't really eaten or slept in days and am just trying to find the strength to do this. I'm a Mom so I know I will be able to do it, but can't really fathom right now where it will come from. I'm pretty sure you can sympathize with that.

  9. Pearldiver profile image72
    Pearldiverposted 12 years ago

    Good Luck Ironher.. Chin up.. All will be well.

    1. lrohner profile image69
      lrohnerposted 12 years agoin reply to this

      Thanks Pearl. You have no idea how much your continued support means to me.

    2. lrohner profile image69
      lrohnerposted 12 years agoin reply to this

      Unfortunately, most likely all will not be well. I'm sorry, but I've spoken with many, many parents who have kids that suffer from this and more than likely Cara will suffer brain damage or will have to live with learning disabilities. She will most likely be on feeding tubes for years. Or, if her condition can be helped by meds alone, she will most likely suffer from either anorexia or excessive hair growth. Right now, those are shining lights to me.

      I'm sorry. Just having yet another breakdown, Pearl, and I am so not wrapping my head around this that it's pathetic and I really am appreciating your support.

  10. profile image0
    wordscribe41posted 12 years ago

    I know you know you have to take care of yourself.  You'll literally have to carve out the time to get your basic biological needs taken care of.  Bring snacks with you.  I know sleeping in hard under these circumstances, but TRY to make room for it.  The more exhausted you are the more overwhelming everything is.  You know all this.  And, you're right, it's amazing what the Mother in you can accomplish.  It is overwhelming and you have every right to feel that way.  I hope you have some friends a little detached from it all to vent.  If not, please do it here.  Your family is very lucky to have you, you know.  Not every grandmother would go to such lengths (sadly, my mom wouldn't).  They are blessed to have you.

    1. lrohner profile image69
      lrohnerposted 12 years agoin reply to this

      Thanks, WS. There's something about a problem cropping up and a mama lioness coming out. But I'm much older now. And quite frankly, there won't be time to take care of biological needs with a healthy infant, a critically ill infant and a daughter in denial and trying to recuperate from a c-section with medical needs. And I think that's what I'm afraid of. Although I know I'll do it, it just seems like too much. I'm so completely overwhelmed.

  11. fayans profile image61
    fayansposted 12 years ago

    My prayer goes to you and yours! May God will always be with her. You take good care of yourself too, Irohner.

    1. lrohner profile image69
      lrohnerposted 12 years agoin reply to this

      Fayans, I so appreciate your response. Thank you. Please pray for Cara. Please.

  12. Gennifer profile image53
    Genniferposted 12 years ago

    Good luck! Everything will be OK, I'm sure!

  13. profile image0
    fierycjposted 12 years ago

    Whao, Irohner, just take it easy. Stay strong for your daughter, its gonna be alright. smile

    1. profile image0
      \Brenda Scullyposted 12 years agoin reply to this

      thinking of you at this most difficult time.... love Brenda xxx

  14. Zsuzsy Bee profile image86
    Zsuzsy Beeposted 12 years ago

    Strength to you and your family.

  15. Jane@CM profile image59
    Jane@CMposted 12 years ago

    Continuing to pray for Cara.

  16. Eaglekiwi profile image77
    Eaglekiwiposted 12 years ago

    An emotionally draining and scarry time for you all Irohner.
    Praying for wisdom and guidance for the specialists and surgeons.
    Peace and speedy healing for the parents.

    And for Gramsy (hope I got that right) Aroha and Prayers xxoo!!

    Kia Kaha-Stay Strong

    Kia Manawa  Stay Determined.

    I just know in my heart ,that Cara has those 'fighting genes' so may these troubles pass quickly ,and one day just be a memory ...smile


    P.S Hopefully you will have access to email etc Irohner, though Im sure computers will be the last thing on your mind..

    I will remember to email you all the same ,even if its to send a hug.

  17. Uninvited Writer profile image77
    Uninvited Writerposted 12 years ago

    I will be thinking of you, your daughter and your grandbaby.
    Like others have said, take care of yourself.

  18. profile image0
    dennisemattposted 12 years ago

    Oh, I am so sorry to hear all this. Am on my way to see your site, but just wanted you to know you and your familly all will be in my thoughts and prayers to. I too, am not overly religious, but I read a report once, stating that people who were prayed for were more likely to pull thru a surgery and recover faster. So, it can't hurt!! Dont worry about all of it at once. Deal with one thing at a time as it comes up. Once at the hospital, let the nurses do thier jobs, make sure you let yourself have a minute here and there.

  19. emievil profile image69
    emievilposted 12 years ago

    I just saw this post and the website for Cara. Stay strong Irohner. We're praying for you and your family, especially for Cara.


This website uses cookies

As a user in the EEA, your approval is needed on a few things. To provide a better website experience, hubpages.com uses cookies (and other similar technologies) and may collect, process, and share personal data. Please choose which areas of our service you consent to our doing so.

For more information on managing or withdrawing consents and how we handle data, visit our Privacy Policy at: https://corp.maven.io/privacy-policy

Show Details
HubPages Device IDThis is used to identify particular browsers or devices when the access the service, and is used for security reasons.
LoginThis is necessary to sign in to the HubPages Service.
Google RecaptchaThis is used to prevent bots and spam. (Privacy Policy)
AkismetThis is used to detect comment spam. (Privacy Policy)
HubPages Google AnalyticsThis is used to provide data on traffic to our website, all personally identifyable data is anonymized. (Privacy Policy)
HubPages Traffic PixelThis is used to collect data on traffic to articles and other pages on our site. Unless you are signed in to a HubPages account, all personally identifiable information is anonymized.
Amazon Web ServicesThis is a cloud services platform that we used to host our service. (Privacy Policy)
CloudflareThis is a cloud CDN service that we use to efficiently deliver files required for our service to operate such as javascript, cascading style sheets, images, and videos. (Privacy Policy)
Google Hosted LibrariesJavascript software libraries such as jQuery are loaded at endpoints on the googleapis.com or gstatic.com domains, for performance and efficiency reasons. (Privacy Policy)
Google Custom SearchThis is feature allows you to search the site. (Privacy Policy)
Google MapsSome articles have Google Maps embedded in them. (Privacy Policy)
Google ChartsThis is used to display charts and graphs on articles and the author center. (Privacy Policy)
Google AdSense Host APIThis service allows you to sign up for or associate a Google AdSense account with HubPages, so that you can earn money from ads on your articles. No data is shared unless you engage with this feature. (Privacy Policy)
Google YouTubeSome articles have YouTube videos embedded in them. (Privacy Policy)
VimeoSome articles have Vimeo videos embedded in them. (Privacy Policy)
PaypalThis is used for a registered author who enrolls in the HubPages Earnings program and requests to be paid via PayPal. No data is shared with Paypal unless you engage with this feature. (Privacy Policy)
Facebook LoginYou can use this to streamline signing up for, or signing in to your Hubpages account. No data is shared with Facebook unless you engage with this feature. (Privacy Policy)
MavenThis supports the Maven widget and search functionality. (Privacy Policy)
Google AdSenseThis is an ad network. (Privacy Policy)
Google DoubleClickGoogle provides ad serving technology and runs an ad network. (Privacy Policy)
Index ExchangeThis is an ad network. (Privacy Policy)
SovrnThis is an ad network. (Privacy Policy)
Facebook AdsThis is an ad network. (Privacy Policy)
Amazon Unified Ad MarketplaceThis is an ad network. (Privacy Policy)
AppNexusThis is an ad network. (Privacy Policy)
OpenxThis is an ad network. (Privacy Policy)
Rubicon ProjectThis is an ad network. (Privacy Policy)
TripleLiftThis is an ad network. (Privacy Policy)
Say MediaWe partner with Say Media to deliver ad campaigns on our sites. (Privacy Policy)
Remarketing PixelsWe may use remarketing pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to advertise the HubPages Service to people that have visited our sites.
Conversion Tracking PixelsWe may use conversion tracking pixels from advertising networks such as Google AdWords, Bing Ads, and Facebook in order to identify when an advertisement has successfully resulted in the desired action, such as signing up for the HubPages Service or publishing an article on the HubPages Service.
Author Google AnalyticsThis is used to provide traffic data and reports to the authors of articles on the HubPages Service. (Privacy Policy)
ComscoreComScore is a media measurement and analytics company providing marketing data and analytics to enterprises, media and advertising agencies, and publishers. Non-consent will result in ComScore only processing obfuscated personal data. (Privacy Policy)
Amazon Tracking PixelSome articles display amazon products as part of the Amazon Affiliate program, this pixel provides traffic statistics for those products (Privacy Policy)
ClickscoThis is a data management platform studying reader behavior (Privacy Policy)