Young Lexi and her Granma Connie need our prayers! Need a miracle!

1. 75

   Mighty Momposted 13 years ago

   My heart goes out to you, Connie, and especially to little Lexi.
   She sounds like an amazing trooper.
   Cyber hugs from MM

   replyreport
2. 85

   Connie Smithposted 13 years ago

   Thanks so much, Zsuzsy.  Lexi is hanging in there right now and not a whole lot going on to write about.  She came home from the hospital this last time with "C-diff" that I didn't know about when I wrote the last post.  Clostridium difficile is a bacteria that everyone has in their digestive systems.  Normally it doesn't cause a problem unless "good" bacteria is eliminated from antibiotic use.  That is one way to get it, but it is also very contagious.  Some articles even go so far as to call it a super-bug or an epidemic.
   
   It causes diarrhea and major precautions have to be taken so others are not infected, like being extra cautious on handwashing and disposal of waste. At the hospital, a patient with C-diff is normally in isolation and anyone who come in has to wear gloves, masks and gowns.  Of course, the fact that Lexi had C-diff wasn't even on her discharge papers.  Amazing, huh? The doc casually called down to let my daughter know right before Lexi was discharged and I didn't even know about it until she mentioned it the next day.  We were a little ticked that it was not explained better.  Thankfully, we are extra cautious anyway and no one else has been infected. 
   
   Lexi is on her second round of chemo.  Unfortunately, most of her hair has fallen out, except in front.  She is tolerating the chemo very well.  The other day, I got out some old toys that she used to carry around before she got into carrying the lipsticks around.  They are little figurines of Dora the Explorer and her sidekick, Boots,who is a monkey.  She got so excited and kicked her little legs around and latched onto those toys. She didn't let them go all day.  That was very heartwarming and encouraging for me to see.

   replyreport
   1. 64

      Lisa HWposted 13 years agoin reply to this

      Connie, I'm starting to wonder if there's some kind of "ESP thing" going on here, because I often do a quick check of this thread before signing off; and so often I've discovered that you've posted - as this time - a minute or a few (a couple of times, maybe twenty) minutes before.  It's probably just a timing thing, although I don't keep any particular schedule these days. 
      
      Anyway, I pretty much wonder each day how Lexi's doing, so it's always nice to see that you've taken the time to post.  Sorry to know about the infection, but I can see why you'd find Lexi's reaction to the toys encouraging.  It's also nice to see that she's tolerating the chemo well.  Oddly, just yesterday I saw a Dora pinata in the grocery store, and I said to my sister, "I can't say I really like Dora the Explorer."  Now that you've said the Dora figurine is something Lexi liked and latched onto, I think I like Dora the Explorer a whole lot after all.   
      
      Continuing to think of Lexi.  (It'll be interesting for me, now, to see if the next time I go to sign off and do my quick check, whether the same thing will happen.  I suppose the explanation is that I don't notice when I check and you haven't posted, but when it happens it seems kind of "interesting" anyway.  I guess the only reason I mention such a silly thing is that I'm thinking, maybe, your tired mind might be able to use a little "insignificant, meaningless, observation" .
      
      I hope Lexi's infection clears up as soon as possible.  She doesn't need that on top of everything else.    I'll say, "goodnight" for now.  I just wanted you to know that someone was out here seeing the post you shared just minutes ago.

      replyreport
3. 82

   Zsuzsy Beeposted 13 years ago

   I was thinking of you all and hope things are going well for Lexi.
   As always my prayers are ongoing and good thought coming your way.
   tons of hugs for sweetems

   replyreport
4. 85

   Connie Smithposted 13 years ago

   Lexi was back in the hospital and back out in 24 hours this week.  She was running a fever so she went in for observation.  I was out of town at my uncle's funeral, so I missed that one.  She is doing good, on her second round and chemo and excited that Nonnie is back at home.  Nothing else to report right now, so no news is good news for a change.  Thanks all, you are the best!

   replyreport
5. 82

   Zsuzsy Beeposted 13 years ago

   Hope everything is going smoothly.
              in my thoughts and prayers always

   replyreport
6. 82

   Zsuzsy Beeposted 13 years ago

   Thinking of you all. My prayers are with you as always.

   replyreport
7. 85

   Connie Smithposted 13 years ago

   Thanks, Zsuzsy.  Lexi is still hanging in there.  She had an MRI yesterday.  Though we have the results, they are not in any type of layman's terms to be able to say anything with certainty.  She has a doctor's appointment on Tuesday and we will know more then.  From what I could make out, it doesn't appear to look too good to me, though the tumor has not grown during the last chemo cycle.  I don't want to speculate on what I read.  I will post after we get results back that we can better understand and know what they mean for Lexi.  Hoping beyond hope that this tumor becomes operable.

   replyreport
   1. 82

      Zsuzsy Beeposted 13 years agoin reply to this

      Keeping my fingers crossed that the news is good oin Tuesday. In my thoughts and prayers.
      tons of hugs for sweetums

      replyreport
8. 85

   Connie Smithposted 13 years ago

   We didn't get any real news on Lexi's MRI.  Our normal neuro-ocologist doctor was out and we had a different oncologist (whose command of the English language left a bit to be desired...) However, my daughter emailed the regular doctor and she is checking with the radiologist for clarification on whether there is a new tumor showing up or whether it is the old tumor (which is actually split into two off-shoots in a segment of the report.  If there is a new tumor....well, you know.  Not sure when we will know for sure.
   
   Her bloodwork came back very good (under the circumstances), so tomorrow will start her third round of chemo.  Hoping again for miraculous results. 
   
   In the meantime, Lexi is making some wonderful improvements in other areas.  Just this morning, she was trying her best to sit up and she also stood up (with lots of help from me). She is definitely trying harder to communicate and her old  speech therapist and "best friend," Maria, brought her a switch today that, when she pushes it, says YES, NO, MOMMY, or NONNIE (that's me...).  She managed to tap it a few times.  If she can learn how to use it, she can call for us when she wants us, allowing her to have some control over communication.  For the first day, she did good.  We will see how it goes. This picture is of Lexi this morning.   
   

   replyreport
9. 64

   Lisa HWposted 13 years ago

   Still hoping for that miracle you mentioned too, Connie.  It's a nice picture of her.  She looks like the same beautiful little cutie as always in it.  I'd imagine that aside from helping her have some more control over her own communication, the "switch thing" might offer her different little other ways of exercising different types of skills too.  I'd think even if it takes a little learning before she can really use it well, even getting practice trying to use it might help her in subtle ways.  Even standing at all sure seems like amazing progress to me.

   replyreport
   1. 82

      Zsuzsy Beeposted 13 years agoin reply to this

      Oh Connie, Squirt looks great. Thanks again for the update and the pic. How amazing about the switch. This will excercise her brain and hand coordination. It never stops to amaze me at what a strong little trouper Lexi is.
      Sending my good thoughts and prayers.

      replyreport
10. 85

    Connie Smithposted 13 years ago

    Thank you all, I appreciate your love and concern for Lexi.  She is so worth it.  Just today, I was holding her and I needed to get up to get something for her.  I said something about getting up and she shook her head no -- four different times!  I really think that she is even more aware than I had previously realized.  It is impossible right now to know how much because of her trach and her eyesight. Still, after today, I really think I am going to have to try harder to teach her to communicate with us.  After she shook her head those times, I tried to get her to shake her head yes.  It didn't work today, but I am going to work on it.  She has shaken her head before, but not to this extent.  I am very encouraged by it.

    replyreport
11. 59

    paradigmsearchposted 13 years ago

    Enough! Gone! Do not make me do inquiry.

    replyreport
    1. 85

       Connie Smithposted 13 years agoin reply to this

       Excuse me?

       replyreport
12. 82

    Zsuzsy Beeposted 13 years ago

    Connie, how precious. With all this serious rigamarole going on in Lexi's life it's so easy to forget that she still is just a little girl whose will needs to push through, and 'No' will always be the easiest. How frustrating it must be for her not to be able to come right out and say what she needs, wants and would like...
    Tons of hugs for sweetems.
    Prayers from our lips to HIS ears and good thoughts coming your way.

    replyreport
13. 82

    Zsuzsy Beeposted 13 years ago

    Hope everything is going smoothly.
    Hugs for sweetums,         
    in my thoughts and prayers always.

    replyreport
14. 85

    Connie Smithposted 13 years ago

    Thanks,Zsuszy.  Lexi actually had a major emergency yesterday.  She had a "plug" in her respiratory system and her oxygen level went down to 11 (normal range 92-100....).  She started turning blue and we had to use an emergency "ambu" bag on her.  Sometimes that will blow a plug away from where it is blocking the air.  In the meantime, we called 911 and she was taken to the hospital.  Fortunately, she wasn't kept since her defenses are down, being on the chemo.  It was, as usual, a highly stressful situation.  We will never get used to those, but they happen frequently -- not the plug, the stressful situations.  As always, Lexi amazes me with her determination to live and as long as she keeps fighting, so will we.  Lexi is so fortunate to have so many wonderful friends out there praying for her and cheering her on.  May God bless you all.

    replyreport
    1. 76

       Aficionadaposted 13 years agoin reply to this

       That precious little child is such an inspiration to me.  She defines the expression "the will to live."
       
       I am blessed to see the reports that you post about her, Connie, and I will continue to pray for every one of you.

       replyreport
15. 82

    habeeposted 13 years ago

    Connie, I don't post much, but I want you to know that I continue to pray for Lexi.

    replyreport
16. 85

    Connie Smithposted 13 years ago

    Thanks all.  We went to the neuro-oncologist yesterday.  I don't think she said anything that I really didn't already know -- I've said before that it will take nothing less than a full blown miracle at this point -- but it is very hard to hear the news straight from the doctor's mouth.  She said that, though we can continue to fight this and perhaps, at some point, win the battle with the cancer, that the damage to her brain has been done.  It is hard to believe when she still continues to fight so hard and makes (even very) small steps toward recovery.  Here is a picture of her last week during physical therapy.  Though she cannot normally sit up alone, the PT was only giving her minimal support here.  She tries so hard and she is such an inspiration, Aficionada, there is no doubt.
    

    replyreport
17. 63

    CASE1WORKERposted 13 years ago

    Thanks for the update- I look out for them . Despite the cancer and the brain damage she seems such a happy child and that is the crux- a little angel to cherish. Praying for you all.

    replyreport
18. 76

    Aficionadaposted 13 years ago

    I know that you (already) don't do this, but don't discount the importance of the human will along with the power of prayer.  Remember Wilma Rudolph, the Olympics sprinter, the "fastest woman on earth" who was born prematurely (4.5 lb. in 1940!) and later caught infantile paralysis.  It was her strong determination that helped her to achieve what doctors said couldn't be done.  There are so many examples of people defying the odds and astounding the experts.  I know that you (on the other hand) are also too well grounded to let false hopes rule your life.  But you can see how determined Lexie is, and how much she wants to do what seems to be impossible.  Her own desire to get better is one of the best medicines that she can receive, and I personally believe her desire is a good guideline for your courses of action. - I'm praying for you all, and that miracle, continually!

    replyreport
19. 82

    Zsuzsy Beeposted 13 years ago

    Aficionada well said... Lexi has proven her strong will power over and over. We will have to pray harder for that special miracle.
    
    You're all in my thoughts and prayers. Strength to you Connie and your familyu of course and special hugs for sweetems.

    replyreport
20. 82

    Zsuzsy Beeposted 13 years ago

    Was just thinking of you all and Lexi. In my thoughts and prayers always.

    replyreport
    1. 82

       habeeposted 13 years agoin reply to this

       Mine, too, Connie!

       replyreport
21. 83

    gajanis786posted 13 years ago

    Connie Smith, we all are praying for the early recovery of Lexi and our best wishes for all of you in your fight against this disease......

    replyreport
22. 85

    Connie Smithposted 13 years ago

    We've been busy this week with appointments.  Today was the oncologist.  Yesterday was the ENT.  On Friday, Lexi will have a scope done that will go down her throat and check for scar tissue.  Then they will decide whether she needs a new trach size, which is probably yes, since the size she currently uses popped out -- even with a "balloon" that blows up after the trach goes in.  Fortunately, it wasn't on my shift.  I hate changing the trach and go out of my way to avoid it.  Other than that, things are going good this week.  Lexi seems more alert.  One of the nurses, who hasn't been in for a few weeks, even commented on how much more alert Lexi seems. She is amazing.  She will probably go back on her chemo on Friday after her scope.  She will have a blood test Friday while she is having the other procedure to make sure her blood cells are doing okay.  We are planning one more round of chemo, then another MRI.  Thanks all for your prayers and thoughts for Lexi.

    replyreport
    1. 82

       habeeposted 13 years agoin reply to this

       Thanks for the update, Connie.

       replyreport
23. 64

    Lisa HWposted 13 years ago

    Still thinking of Lexi and you, Connie.  Still watching for, and appreciating, the updates here (especially since you've got so much to be doing and thinking about).

    replyreport
24. 82

    Zsuzsy Beeposted 13 years ago

    You're all in my thoughts and prayers. We will have to pray harder for that special miracle. Strength to you Connie, your family and special bearhugs for sweety-pie.

    replyreport
25. 85

    Connie Smithposted 13 years ago

    Lexi did well with her scope procedure.  We are always scared when she has to be anesthetized.  We have some (hopefully) good news.  Florida Hospital in Orlando has gotten approval through Lexi's insurance company to see her next week.  My daughter is very excited.  They did a 26 page insurance form to get the approval so she feels that they must think that there is something they can do for Lexi.  We had sent them all her MRI discs and copies of radiology reports, etc., as we had done with several other major cancer hospitals around the country.  Florida Hospital is supposed to be a nationally recognized "Cancer Institute" who is on the cutting edge of technology.  We sure hope so and we hope that they can do something for Lexi.  Our appointment is next Thursday at 3:00, so wish us luck. This picture was taken yesterday at her appointment.
    

    replyreport
    1. 76

       Aficionadaposted 13 years agoin reply to this

       
       Good news!  I'll keep praying fervently for all of you and the medical teams.

       replyreport
    2. 82

       habeeposted 13 years agoin reply to this

       What a beautiful little girl!

       replyreport
       1. 71

          Dorsiposted 13 years agoin reply to this

          Praise God for this good news. It sounds like Lexi is going to get the best of the best for her cancer treatment. Praying for you and your family.

          replyreport
26. 85

    Connie Smithposted 13 years ago

    Thanks, girls.  As soon as I know something, I will post it.  Praying, praying!

    replyreport
27. 68

    emievilposted 13 years ago

    My heart went out to Lexi when I saw the picture. Praying for her and for your family. Good luck Connie.

    replyreport
28. 82

    Zsuzsy Beeposted 13 years ago

    Lexi looks great Connie. Hoping with all my heart that our prayers reach HIS ears. Strength to you all. Giant bear hugs to squirt.

    replyreport
29. 85

    Connie Smithposted 13 years ago

    No news is good news, so they say....except in this case. The news wasn't any worse than before, but it was basically the same.  I am not sure why they filled out a 26 page referral request for the insurance company for an out of network appointment when they didn't have anything new to tell us, but that is what happened. While we don't hear it everyday, what she said was that she thinks that there isn't any doctor out there who would be willing to operate on Lexi, due to "ethics."  I had to get up and leave....after I told her what a crock that was.  "Ethics" is what got Lexi in this situation to begin with.  Docs are afraid that they will operate and she will never have a quality of life, but will still live what could be a long life.  WE don't want that for Lexi more than they do not.  The problem is still her current condition of having had the stroke and not having totally recovered from it.  I agree, it doesn't look good, but I KNOW she is still in there.  She has lost her ability to communicate with us, but she is there, there is no doubt in my mind.  Even the nurses talk about how she gets excited when I come into the room and have seen her mouth, "Na Na," when she hears my voice.  Our hands are tied and it just looks like we are going to have to face the facts that no one can -- or will -- do anything for her.  I am still dealing with my feelings over it, but will keep you all informed if something else comes up.  Thanks, all for being there for Lexi and for us.  You all mean more to me than you know.

    replyreport
30. 99

    leahleflerposted 13 years ago

    Connie, I am sending every thought and prayer in your direction - and in Lexi's. It seems like a lot of stress to be sent to an out of network provider, only to have them tell you that they won't do anything to help that beautiful girl. Can she communicate with a PECS board? Not sure if she has the use of her hands, and I'm sure you've already thought of it.
    
    Sending so many hugs your way.

    replyreport
    1. 85

       Connie Smithposted 13 years agoin reply to this

       Not sure what a PECS board is for sure, but we just got a little strip thing to teach Lexi how to communicate with us.  One of our problems is the therapists are ALWAYS sick, out of town, etc, so the training is just not there.  We just got the (correct) Passy Muir valve that lets a trach patient speak.  The last one was not made for the vent and all the therapist could do was just take the vent off for a few minutes at a time with the valve on.  Now that we have the right thing, she can't show up for the second week running.  It is so frustrating! As always, I appreciate you all loving Lexi the way you do.  Just a few minutes ago, for the first time, she stuck her arms out to me.  She has been "talking" quite a bit today, so again, we are seeing some signs of improvement.  Still, where do we go with this?  It doesn't look like too far.  I just hate the thought of her being so determined and everyone letting her down.  Still, I whispered in her ear, as I always do, for her to ask God to make her better.  She is already one of his little angels.

       replyreport
31. 82

    habeeposted 13 years ago

    I've been waiting for more news on Lexi, but this isn't what we were all hoping for. I'm still praying, and I know you guys haven't given up, either!

    replyreport
32. 82

    Zsuzsy Beeposted 13 years ago

    How 'doctorish' of them Connie. They can be so frustrating when they don't give straight answers. I myself am going up agaist them at the moment with my eyes and at times I would just like to get up and choke them. Pure frustration every time I have to talk to the lot of them. Stay strong my dear.
    Prayers and good thoughts coming your way. Giant sized bear hugs to sweetems.

    replyreport
33. 75

    Mighty Momposted 13 years ago

    Dear Connie,
    Keep fighting. Keep looking until you get the answers that feel right to YOU.
    Try to sit quietly and feel all the prayers and love coming your way and ask God (or your Higher Power or whoever guides your actions) for some direction.
    It has been my experience -- very recently -- that just when things look darkest and the medical establishment is at its most arrogant + inept + discouraging, that's when clarity comes.
    I have also had to learn (and this lesson did not come easily) to keep the end goal in mind. What am I fighting for? What will constitute a "win"?
    When I've gotten extremely agitated (which has been almost a constant state for months) it's easy to get thrown off track.
    So if I can mix a bunch of metaphors here,
    Keep your eyes on the prize, and don't blink until you see the whites of their eyes.
    Not sure if any of this is helpful or even makes sense.
    Sending you prayers for GUARDIAN angels to be with you and your little angel.
    MM

    replyreport
34. 76

    Aficionadaposted 13 years ago

    I'll keep praying until you all know that whatever answer you are getting is coming from God - and then I'll keep praying some more.
    
    Sending love, peace, strength, and lots of hugs.  Much, much love to that precious little girl.

    replyreport
35. 82

    Zsuzsy Beeposted 13 years ago

    You were in my thoughts. Hoping with all my heart that our prayers reach HIS ears. Giant size bear hugs to squirt.

    replyreport
36. 85

    Connie Smithposted 13 years ago

    Finally, we have some good news to report!  Lexi's MRI results came back and her tumor has shrunk.  Only slightly, but that is soooooo much better than growing 20% a month!!  The chemo is obviously helping.  Today, she started her 4th round. The one she is on is called Etoposide and is not as heavy hitting as some others. It is taken through her stomach tube, so we administer at home, making it easier for her and taken daily for 21 days at a time.  Lately, she has been much more alert and we can all see some improvement.  I am ecstatic over it!  She has a long, long way to go, but baby steps are a step in the right direction.  As always, I thank you all for your heartfelt wishes and prayers for Lexi.  God is listening.

    replyreport
    1. 82

       habeeposted 13 years agoin reply to this

       Connie, this brought tears to my eyes! I think this is awesome news!!

       replyreport
37. 59

    Jane@CMposted 13 years ago

    What  a blessing!!!

    replyreport
38. 76

    Aficionadaposted 13 years ago

    Amen!  I have chills up my spine.  How totally awesome indeed.  We'll keep praying!

    replyreport
39. 82

    Zsuzsy Beeposted 13 years ago

    Oh Connie what amazing news. Smiles then tears then smiles again on my face... this is really great news.  On-going prayers and good thoughts coming your way. Strength to you all and hugs to sweetems.

    replyreport
40. 64

    Lisa HWposted 13 years ago

    Oh - I'm so glad I decided to scan the forums before signing off!  I've been watching for any news since your last post here, Connie.  I'm so, so, moved and thankful to see your great news.  Continued thoughts and prayers.

    replyreport
41. 71

    Dorsiposted 13 years ago

    That's awesome news Connie. I am SOOO glad to hear this. How are you holding up my dear? You are in my thoughts often.

    replyreport
42. 93

    wordscribe43posted 13 years ago

    So glad to hear that, Connie.  What a special holiday gift.

    replyreport
43. 85

    Connie Smithposted 13 years ago

    Thank you all, Lexi's cheerleaders!  Your support means everything to us and has gotten us through some very tough times.  It has also given me renewed faith in people, something that I was struggling with before Lexi got sick.  I know I've told you that before.  You just all simply amaze me with your love and support for a little girl that you've never met.  Dorsi asked how I am holding up and I am good as long as Lexi is here.  The thought of losing her is unbearable, but I know you all can empathize with that.  While all this has been going on, I have been taking classes full time at my local college.  I dropped out last semester (after Lexi's stroke) but started back up this fall.  This semester, all my classes are online, just in case.  It keeps me busy but available for Lexi if I need to be.  The good news is that I think I have my daughter (Lexi's mother) ready to return to school.  She is considering becoming a phyical therapy assistant, which has very good prospects for future employment. Our lives are in limbo right now, so I am glad I had the opportunity to go back to school and, being a parent, my greatest desire is for my daughters to be able to support themselves independently.  Education is the best way to accomplish that.

    replyreport
44. 74

    Patty Inglish, MSposted 13 years ago

    Renewing my prayers for Lexi and all of you and keeping faith that healing will manifest even more. Keep fighting to make the healthcare system work for and with you and I'll keep praying in agreement with others on this thread.

    replyreport
45. 85

    Connie Smithposted 13 years ago

    It has been a while since I posted.  Not much new with Lexi...except that we are seeing some real encouragement in Lexi's alertness.  It is hard to explain because it is more something I feel than can be measured.  I have said before that she is holding her head up better.  She can still only hold it up for a minute or two at a time.  I can stand her up for a minute or two at a time (giving support to her but she is holding her legs up -- it is her torso that she cannot control so well), and I am having to give much less support when she is sitting up for several minutes at a time.  I can just feel her coming back and knowing more and more what is going on.  She gets excited when I come in the room.  I know this because she starts kicking a bit and moving her arms.  She is starting to grab on to me when I go to her bedside and I can tell she is wanting me to pick her up.  It seems like she is trying harder and harder to communicate and she is starting to be able to really let us know what she wants and don't want.  For instance, she has a probe for her oxygen sensor (pulse-ox machine to monitor oxygen levels) that goes like a bandaid around her toe.  She doesn't like it there and has really started to jerk her leg back (showing good muscle movement there) to say she doesn't want it there.  Fortunately, it can also go on her thumb, so when she "complains" I make sure that it goes on the thumb. We have another week or so on this chemo round and will then have another MRI, so no news there.  However, the doc was amazed this past week when Kara (my daughter) showed her how Lexi is holding herself up.  She is usually asleep or deep in there when we go, so the doc has never seen her alert like this.  She also answered 3 questions in a row tonite over whether she wanted to hold her lipstick, her little monkey figurine (Boots) or another little toy.  When we tried to put Boots in her hand even though she shook her head no, she dropped it, but held on to the lipstick.  All of this is so encouraging to us.  Lexi is turning four next Monday.  It has been almost two years of her life fighting this and I pray that God is finally answering our prayers for Lexi.  No little child should have to suffer like she does. This pic was taken a week or two ago, but shows her holding her head up and minimum support (under the circumstances).  She also tried to play the piano.  She really can't but she is moving toward it.
    

    replyreport
    1. 66

       prettydarkhorseposted 13 years agoin reply to this

       Precious little one. You will be in my prayers!!!

       replyreport
46. 68

    emievilposted 13 years ago

    That is great news! Hope to hear more of this in the future. Advance happy birthday to Lexi .

    replyreport
47. 64

    Lisa HWposted 13 years ago

    Connie, what a nice picture of Lexi.  She looks well. She looks so much like any other almost-four-year-old it's almost hard to imagine she's going through what she is (and has gone through all she has).  That's got to be a reflection of all the love and care she's getting, and her own resilience and strength.  The minimum amount of support to sit up shows in the picture.  I'd imagine, everything else aside, that having school would give you (or your daughter) a way to have something else to think about, and kind of take a break from some of the strain of thinking about Lexi's progress, condition, etc.  I'd imagine the whole situation could often seem "all consuming"  for you and Kara.  Fingers crossed (and continued thoughts and prayers) that the upcoming MRI will bring some more encouraging news.

    replyreport
48. 82

    habeeposted 13 years ago

    Awesome - just awesome! 2 of my granddaughters - Lexi and Audrie - have joined the Lexi cheerleading team. They're on a cheer squad, so they should be good! Connie, I had a picture of them to send Lexi in with the note from us, but I just found it yesterday. I had somehow left it out. The 2 girls have made cards for little Lexi, so I'll include the pic when I send those.

    replyreport
49. 71

    Dorsiposted 13 years ago

    Connie,
    Lexi is looking so much healthier!! I am so encouraged for all of you. Continued prayers for a miracle for Lexi!

    replyreport
50. 82

    Zsuzsy Beeposted 13 years ago

    Connie, thank you for posting. Your update is encouraging. What a great picture. Lexi really looks sooo good. Hard to believe considering all that that little munchkin has been through already. We'll have to increase our prayers louder and better so that we'll be seeing new pictures of Lexi riding her tricycle again, really soon. You're all in my thoughts and prayers.

    replyreport